Thursday, February 26, 2015

My Feelings

I have been asked many times, "How are you feeling?" " How are you doing?" And of course my answer is usually we are doing good.

Part of this blog is so that I can be raw and write my feelings and emotions.  For the most part, we are doing good.  Of course, I am so scared about what is ahead for us, and what the future holds.  It is scary knowing our daughter is going to have to go through so many procedures.  I don't know how she is going to react to anesthesia, or even how much pain she will have to endure, but what I do know is we serve a Mighty God.  Through all of my fears, and unknowns, I have felt the presence of my Heavenly Father. Without Him, I wouldn't be OK.

We start the first round of doctor visits on Monday.  As much as I am ready to have some answers, I really want to freeze time where I know she is not going through any pain at all.

Please pray that we do get some answers, and for me to not have an anxious heart.

Last, here is a picture of our sweet miracle.  We chose for her ear to be exposed and a part of who she is, instead of laying her on the other side and covering it up!

Thursday, February 19, 2015

New beginnings

We were blessed with our new daughter, Brynlee Shay, on February 11th at 12:01 am.  I had thought she would be here on the 10th, but missed it by a couple of minutes.  We were so overjoyed with her arrival because the doctors had told us we would not have another child unless we went through fertility treatments again.  Our God proved them wrong, and gave us our little miracle. 

Quickly, our world got shaken with news about health issues.  Brynlee was born with half an ear and a very narrow ear canal.  She failed her hearing tests in the hospital, and has been referred to an audiologist.  We go on March 17th for her first appointment.  The pediatrician told us she would go through a series of procedures to hopefully correct the problem. They will also do a sonogram on her kidneys because the ears and kidneys develop at the same time in the womb. She was also diagnosed with an abnormal jawline, and will be referred to a craniologist for this issue.  We are also going to be referred to a genetic specialist.  Bryn was also born with a click in her hip, and we are praying that that will go away with time.

There are so many unknown questions as to what our future holds, and all the procedures that our daughter will have to go through.  She has already proven to be such a fighter.

We are beyond blessed by all the prayers and support, and ask for the prayers to continue.  I will be updating the blog, as we feel this is the easiest way to get the information out about our sweet girl.