Friday, May 1, 2015

ENT, MRI, results

We had n ENT appointment on Monday, April 27th.  The doctor was unable to see through the ear canal to check the inner ear.  We already had a MRI scheduled for that Thursday, so she added what she needed them to look at for her.  Brynlee will also be fitted for a hearing device in September so she can keep her hearing nerve active. She has also referred us to genetics to see if there is something wrong with her genetics, so we will know later down the line what we are dealing with.  I will say I felt pretty discouraged leaving there without answers AGAIN, and being referred to another specialist.  I know my baby girl is young and it will just take time.

Thursday, April 30th, we had Bryn's MRI.  We had to be at Cook's by 6:00 am to get registered.  Kysen had his first sleep over with some friends and LOVED it.  We are so thankful that people love my whole family and will watch my child.  I was ok with everything until Shaylor said, "What if she doesn't wake up?" That's when my nerves went off the charts.  I had felt a calmness about everything, I knew so many people were praying not only for Brynlee, but the whole family.  Anyway, we got to the hospital and got all checked in, and we had to wait for the MRI machine to warm up, then it was go time.  We used that extra time to just pray over our child.  She was all smiles even though she was hungry.  I got to go with her and Shaylor stayed behind.  They gave her gas to put her to sleep before doing the IV.  IT was cotton candy flavored, and she was out in about 45 seconds.  They then asked me to leave, and escorted Shaylor and I to the waiting room and told us it would be between an hour and an hour and a half.  Luckily, they give you a pager so you don't have to just sit and stare at each other.  We went and had breakfast in the hospital cafeteria, then grabbed a starbucks.  We went back to the waiting room, and Shaylor of course took a nap, and I did some work on my iPad.  Shortly after, they called us back, and it was on of the best feelings to hold my baby girl again!  She was a rockstar!  The rest of the day she was kind of out of it, and slept a lot.  Kysen was at school, so we took advantage of that and slept too.

We were told we would get the results in 2-3 business days, so we were shocked when the phone rang with the results.  The lady we talked to said everything was normal.  Her nerves are fully developed, she has an ear drum, and her brain is functioning the way an 11 week old baby's brain should function.  I just dropped to my knees and cried, and thanked God for the miracle.  Our daughter is definitely a fighter and she definitely has God on her side!

We go to the cranifacialist on Wednesday to see about the bone structure in her face and her half ear.  Not really sure what is in store for us with him, but I guess we will find out of Wednesday.

Prayer Request:
Please continue to keep Brynlee in your prayers as we still have a long road ahead of us.
Also, Kysen has been acting out more, and I think it is an attention thing.  I know Shaylor and I have had a lot of focus on Brynlee, so pray for us to be aware of our time.

The MRI report came back so positive

                                               Waiting at the ENT's office
                                                        Prepped for MRI
                                                      Being reunited never felt so good!

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